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Fall 2021 Newsletter

September 28, 2021
Fall 2021 Newsletter

Hope Research Paper Accepted & Published!

By Emily von Scheven, Bhupinder K. Nahal, Rosa Kelekian, Christina Frenzel, Victoria Vanderpoel and Linda S. Franck on September 23, 2021
Click here to read our full paper    

Presentation Accepted for Health Experience Design (HXD) Conference 2021

By Jan Yeager on January 27, 2021
Jan Yeager, a Service Designer with the UCSF Clinical Innovation Center, has been helping us design the UCSF Child & Adolescent Chronic Illness Center. Her presentation was recently accepted for the upcoming Health Experience Design (HXD) Conference on April 6, 2021. Please see summary below of...

Research Paper Accepted and Published!

By Emily von Scheven, Bhupinder Nahal, Isabel Cohen, Rosa Kelekian, Linda Franck on October 17, 2020
Research Questions that Matter to Us: priorities of young people with chronic illnesses and their caregivers

Wellness for a Lifetime

August 18, 2020
Emma needs medicine around the clock – 32 syringes worth, administered through a gastrostomy tube because she can’t swallow. This likely will be the reality for the spunky 6-year-old for the rest of her life. She has cystinosis, a rare metabolic disease. "The challenges of caring for Emma are...

New Center Shines Spotlight on Chronic Illness in Children

By Leslie Lingaas on September 10, 2018
With improvements in the treatment of previously fatal diseases, more children are surviving into adulthood with chronic health conditions––an estimated 5 million children and adolescents in the United States alone. These young people face a lifetime of disease, and many develop new problems as a...

Highest Rated Improvement Initiative

By Erica Lawson & Megumi Okumura on May 30, 2018
We wanted to congratulate our Transition Work Group for getting recognized during Poster Leader Rounds as one of the “Highest Rated Improvement Initiatives” among the nearly 160 presented at the 3rd Annual UCSF Health Improvement Poster Symposium on May 30, 2018!