UCSF Benioff Children's Hospital Family Advisory Council (FAC):

The Family Advisory Council was developed in 2006 to provide a forum for interaction between families and hospital staff, and a mechanism to respond to patient and family feedback. The council functions as a consultant to UCSF Benioff Children’s Hospital in areas of family care. The Council members include UCSF community families and hospital leadership staff. Currently there are 15 parent members, representing diverse experiences in all units of the children's hospital including: acute and critical care, surgery, rehabilitation, oncology, bone marrow transplant, outpatient clinics, labor and delivery and the intensive care nursery. Many of these families have children with chronic disease and they have lived the experience of these conditions. The creation of this council reflects the institution’s value of the opinions and suggestions of families, as well as the belief that families bring unique knowledge, skills and experience to caring for a child. They have experience working with investigators on research projects and are eager to partner with us in the development of CER questions. 

UCSF Benioff Children's Hospital Youth Advisory Council (YAC):

The Youth Advisory Council was established in 2013 as a platform for teenagers and young adults to collaborate with the interdisciplinary team and strengthen the partnership between the patients, family, medical team, and community. The council empowers teens/young adults to take on a more active role in their care, facilitates peers to peer support, and provides educational opportunities for providers to learn how to best care for the adolescent population. Teen/young adult patients are in a transitioning phase of life, vacillating between the pediatric and adult world, both medically and personally; this allows for a very unique and insightful perspective. Currently, there are 12 members, ranging between 16-23years old, representing a variety of diagnoses and experiences, including: inpatient and acute care, lung transplant, gastrointestinal diagnosis, muscular dystrophy, and so much more.

https://www.ucsfbenioffchildrens.org/services/family_advisory_council/index.html

 

Certified Child Life Specialist: Becky Higbee Sumner, MA, CCLS

Certified Child Life Specialist: Caitlin Mcnamara, MS, CCLS, CIMI